1. < Post-COVID Recovery & COVID-19

Thinking it’s all in our heads…

Posted by plisbe @plisbe, Feb 19, 2023

Not sure this is the appropriate forum to talk about this- but, when I first was diagnosed with LC ( 13 months ago) I remember sitting in pulmonologist office and when she told me it’s not in my head - I am sick- I broke down. She - and many since- have spoken about the relief we feel when a physician tells us this is a real thing.. To this day- I feel like so much of this is in my head- especially when my symptoms aren’t as severe. The shortness of breathe, the racing heart, the jumpiness, the ear- fullness. The chest and base of skull pain. I’m so fortunate that these symptoms aren’t keeping me bed ridden anymore- but that nagging inability to believe I’m not doing this to myself is hard to navigate. Why is that? Is it because symptoms are so weird? So hard to describe? We can look like we are fine? Not sure what I’m asking here- just wondering how others have dealt with this. Thanks- hang in there all!

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

joansmurphy | @joansmurphy | Feb 21, 2023
In reply to @auntb65 "I sure can relate to this! 15 months later and still dealing with dizziness and “tightness”..." + (show)
@auntb65

I sure can relate to this! 15 months later and still dealing with dizziness and “tightness” in different areas. I’ve seen so many doctors, had many tests (that all come back normal), tried physical therapy and even massages to relieve the tightness. Nothing has gotten me back to feeling like myself before Covid. I am much better than I was last year at this time. And I’m so thankful I’m not worse and I’m able to function. I get so frustrated that I’m not over this yet. And I can’t count the times I’ve wondered if this is all in my head!! I talk to family and friends about it but since they haven’t gone through this-they don’t really understand what I’m trying to say. And it is hard to describe what you’re feeling!! I honestly don’t know where to go from here. So I just take each day one day at at time and pray that time will take care of this.
Hope we all find relief soon!

Jump to this post

I just said the same thing in another comment. I feel good now reading your comment & knowing I’m not the only one who feels like this. I look fine except for losing most of my hair from not eating enough. Hang in there!

REPLY
law59 | @law59 | Feb 23, 2023

Hi @plisbe. Think your description of what this experience is like is perfect! For me as well, feeling a little better one moment but not knowing how much further to try healing is the most daunting because of the severe reaction that makes no rhyme or reason. Perfect example for me in beginning over year ago told to walk as tolerated about 2 hrs by pcp yet pulmonologist month later shared only 5 minutes a day! No wonder I was beyond confused with what my body felt like and my emotional roller coaster still on🙃. Still hanging in there and hopeful for all of us for bright futures!🌈

REPLY
keepinformed | @keepinformed | Mar 9, 2023
In reply to @bereese "I've had LC since Jan 2020 and the vibration since spring of 2021...sent me to a..." + (show)
@bereese

I've had LC since Jan 2020 and the vibration since spring of 2021...sent me to a heart specialist and a neurologist with no results...the tremor is 24/7 but internal only (so far) so the neurologist sent me away...the worst is when your PC ignores your symptoms...

Jump to this post

Nothing is worse when a Doctor ignores your symptoms…i feel for you
I got COVID 12/2022…. These inner tremors are no picnic…. Mine are for the most part 24/7… if get stressed they are worse
Have weakness of lower legs with periods of tingling/ numbness
MRI of back postponed due to not authorized as of yet….the red tape is so frustrating but we all need to have these diagnostic tests done as mentioned to ensure no underlying issues.
We all must advocate for ourselves to get to the bottom of what is going on and how to treat our symptoms.
I want my old self back … i am a very hard worker but i don’t have the stamina to do what u use to do
Hang in everyone …

REPLY
rose5 | @rose5 | Mar 10, 2023

You might as well be talking about me. Pretty much the same here. I’ll have a few bad days and maybe a couple pretty good days. But even with the good days I’m not able to do a couple simple chores around the house, then I’m back to not feeling well. I guess my couch has been my best friend these
13 1/2 mths. 😞

REPLY
1 reply
joansmurphy | @joansmurphy | Mar 11, 2023
In reply to @rose5 "You might as well be talking about me. Pretty much the same here. I’ll have a..." + (show)
@rose5

You might as well be talking about me. Pretty much the same here. I’ll have a few bad days and maybe a couple pretty good days. But even with the good days I’m not able to do a couple simple chores around the house, then I’m back to not feeling well. I guess my couch has been my best friend these
13 1/2 mths. 😞

Jump to this post

May I suggest some physical therapy. A year ago I was sleeping 16-20 hours a day. Being Irish, I made corned beef on St. Patrick’s Day because it just needs to be boiled. I did not clean the pot until June and it was September before I put the pot away. I finished 5 months of PT 2 weeks ago. My stamina has greatly increased. My other symptoms have persisted (brain fog, foods still don’t taste right, sleep 12 hours a day) but I’m able to do some shopping and housework now without becoming short of breath. Good luck & best wishes.

REPLY
tchrart | @tchrart | Mar 11, 2023

I thought that what I was feeling was in my head until the tiredness and lack of any energy hit me.
Took me over a month to realize that my feelings were real knew it was something I had to deal with.
Hopefully for you you will recover and be back to normal quickly.

REPLY
View MoreView Less
Please sign in or register to post a reply.