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Longtime caregiver looking for support and coping tips

Caregivers | Last Active: 9 hours ago | Replies (89)

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@asterken

I am managing pretty well. I am a social worker and a psychologist so I am well acquainted with what services exist in my community, and how to access. When my father was not responding well to treatment the oncologist had their social worker call me and I was astounded at how little she knew. I am better equipped to manage this stress than most lay people.

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Replies to "I am managing pretty well. I am a social worker and a psychologist so I am..."

@asterken, it must be such as asset to have your professional knowledge of local services and how to access them when you found yourself a caregiver to your father.

What tips would you give to others in how to find local community services and resources?

I am a speech/language pathologist that spent years working with patients with dementia, strokes, brain injuries. I taught staff and family how to best communicate with the patients, how to set up the environment for successful interactions, strategies for interaction.
But my father had several small strokes, and then some form of dementia or mental problems that I had never encountered. Hoarding, delusions, strange behaviors, striking out at others started. It is so different when it is your own parent than when you are in a professional role. Just being able to vent and cry and talk about the craziness to a good listener is good for the soul. We also had to get guardianship and put him in a locked ward of a nursing home which was the most horrible thing to have to do. Dad was oriented, could answer all the questions on their nursing form. But he would show up at a family Christmas Eve party with a machete tucked in his belt. He was reusing adult disposable diapers, eating rotten food, showing up at the hospital for a heart transplant (at 90 years old).
I guess I am trying to say we can have the knowledge, the skills, the empathy, but when it is a parent all bets are off.
And also, we think we can handle more than others and set ourselves up to accomplish impossible tasks. There is a lot of guilt about saying “I can’t do this and I have to place this person in another setting.”