There’s no cure for SS. I have decided to do the best that I can for as long as I can. Please go to Mayo Clinic/Steve GRINSTEAD. Minor corrections, the operation was 8 hours not 4.also, I never went back for follow up. Please go to “Dr. Google.” Type in “superficial siderosis.” Siderosis will be underlined in red as if you misspelled it. Keep going. 

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Please forgive me. SS has caused not only damage to the cerebellum, but my entire central nervous system. Therefore I shake. So hard to type when you shake. My wife stayed with me for 2 years after the surgery. Then she abandoned me for a new man. She got $349 k from me. NC is no fault divorce state. So all assets are divided 50/50. She never contributed 50-%, but that’s what she got. A good deal for her. So figure, a severely handicapped man or $349k? She took the $. I know, I know, that sounds unbelievable, it’s true.

Thanks! I was wondering where my post went. I thought it was removed. No I asked docs for magnesium test and they don't do it so I tried finding it elsewhere but someone said it should be a special test rbc test but that's pretty impossible to find.
I'm trying to take magnesium tablets but I don't know how much to take safely. Also given the rapid onset of symptoms in like 2 days I keep thinking it's some inflammatory process or bad reaction to nexium. My ca levels, b12 etc are OK. I can't help seeing parallels with that vasculitis I forget what it was called that attacks the sinuses. This started with a horrible feeling behind my nose and a raw feeling in sinuses and when I lightly push on a spot at the very top of the bridge of my nose between my eyes it sets of a cascade of weird symptoms like tingling gums and preaussure in head etc. It really scares me it's like the bone is going soft. The didn't mention anything on mri but I don't know if they were looking. Should they have seen a tumor there on mri?