Lung transplant wait list

Posted by mariakathleen @mariakathleen, Feb 16, 2023

Hi,
I have Antisynthetase Syndrome , diagnosed in Jan. 2019.
I got on lung transplant list Jan. 15, 2023.
Just waiting for that call!
Anyone else on list?

Interested in more discussions like this? Go to the Lung Health Support Group.

Shari | @shariscorner | Feb 23, 2023

In reply to @mariakathleen "Hi, Just an update. This past Sat. I got a call they had lungs for me,..." + (show)

I had my first dry run 2 weeks ago. Same type of deal where I was 30 min from surgery, all prepped with a catheter in my jugular and everything. Lungs had pneumonia. It was disappointing to have to then tell all my family and friends it was a no go. It’s all in God’s time and hands. Prayers for the donor’s family and that you get your lungs soon!

mariakathleen | @mariakathleen | Feb 23, 2023

In reply to @shariscorner "Been on the list since Jan 27, 2023. Had a dry run last week. My heart..." + (show)

Hi Shari,
Thanks for your kind words!
So you experienced a dry run too! Hard to cope with that, but like I mentioned before, it’s for the best that they get the healthiest lungs for us.
Wow, you had gone to pre-op! I was just about to.
Where do you live?
I wish you and your family all the best and you are in my prayers! God bless you.