← Return to Shingrex and ET platelet levels

Discussion

Shingrex and ET platelet levels

Blood Cancers & Disorders | Last Active: Feb 24, 2023 | Replies (8)
Comment receiving replies
@1995victoria

Do you have ET? While not attributing causality, vaccine might reduce platelets in someone with ET, not necessarily ITP. I will have a follow up blood test to see if my platelets returned to "normal" Or there might be interaction between HU and shingrix vaccine? Will be interesting to explore.

Jump to this post

Replies to "Do you have ET? While not attributing causality, vaccine might reduce platelets in someone with ET,..."
nohrt4me | @nohrt4me | Feb 23, 2023

Yes, I am CALR-ET for at least 15 years, and I'm sure I come off like an insufferable know it all at times.

I used to talk to a lot of fellow ET patients, and it seems like everyone has different physical and psychological responses to it. The type of mutation also seems to cause different responses to the disease. Some experts have talked about seeing CALR and JAK2 as different diseases altogether, and they treat them differently.

I'm not pooh-poohing anything, but I do try to be a bit skeptical. Some anecdotal info just scares people and adds to the stress of carrying around a chronic illness. Last I heard from Dr Mesa at Mayo in an online forum and from my own hemo is that the two main vaccines are safe for most ET patients, especially since ET patients are more susceptible to the clotting effect covid may have.

ET patients who are unvaxxed can wear masks during surges and high transmission seasons to protect themselves and others.

The two things that I know of that have a proven cause and effect on lowering platelets are infused chemo for an acute cancer and pregnancy.

VIEW AND REPLY