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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: May 26 10:50am | Replies (6004)

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@becky70

I finished taxcel 3 months ago. I had 12 sessions of tacxel weekly, with herceptin/perjeta every 3 weeks.. I did have ice on my feet and fingers. It didn’t seem to help. I was told at one of my consult appointments that the icing should begin half hour before and half hour after treatment. Scheduling at treatment didn’t allow for that and was then told they never heard of that and never do that. But I don’t think I could have tolerated more coldness. I am getting only herceptin now every 3 weeks. Neuropathy is in my toes, fingertips and tongue. Fingernails are extremely dry and a couple are coming apart from the skin underneath. I’ve been rubbing coconut oil, which seems to help some.

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Replies to "I finished taxcel 3 months ago. I had 12 sessions of tacxel weekly, with herceptin/perjeta every..."

Welcome @becky70, It sounds like you might experiencing neuropathy symptoms from your treatment. I'm wondering if you might find the following discussions helpful:
--- Chemotherapy-induced neuropathy: What helps get rid of it?:
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/
--- Baclofen for Chemo-induced Peripheral Neuropathy?:
https://connect.mayoclinic.org/discussion/baclofen-users/
--- Chemo-induced Peripheral Neuropathy and Breast Cancer:
https://connect.mayoclinic.org/discussion/neuropathy-11/.

Have you discussed the symptoms with care team to see if they might have some other suggestions?

ice only makes the feet more numb-get with a pt who specializes in neuropathy to learn exercises that can help you and take one half a pill of Effexor 2x a day as your med is not working-Michael Storman