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Would like to talk to other people with rumination syndrome
Digestive Health | Last Active: Nov 15, 2023 | Replies (16)Comment receiving replies
Hi @mmacnelly thank you for telling you and your wife's story. That must be so difficult to see her in so much pain.
I wanted to tag @kariulrich and @contentandwell as they have experience with chronic health issues, and may be able offer you support.
I also wanted to share a link to the Cargivers group, so you can connect with others who take care of a loved one: https://connect.mayoclinic.org/group/caregivers/
How have you been feeling helping your wife with this?
Replies to "Hi @mmacnelly thank you for telling you and your wife's story. That must be so difficult..."
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@ethanmcconkey I really have not had any chronic conditions unless you consider things like Barrett's Esophagus and Diabetes to be chronic, which they are but they are diagnosed and treated.
@mmacnelly I am so sorry that you and your wife are going through this. What did Mayo suggest when they diagnosed it as rumination syndrome? I just googled it and it sounds as if biofeedback is one of the ways to deal with it. It sounds as if that diagnosis and the more recent one of chronic pancreatitis are in conflict. If it is chronic pancreatitis what can be done for that? She is way too young to be dealing with such a chronic condition and not able to work or function well. I hope you find some relief for her, from some doctor. If the strategies for rumination syndrome did not help her then it could be chronic pancreatitis, in which case I would think that there might be a more actual treatment for it, but I am not familiar with pancreatitis so I really do not know.
I presume you have sought out different opinions from other gastroenterologists, hopefully at another large medical center. I am sure you are actively pursuing a diagnosis and help for her. Please keep us up on her progress.
JK