Connect
← Return to Waldenstrom macroglobulinemia: What can I expect with chemo?
Discussion
Waldenstrom macroglobulinemia: What can I expect with chemo?
Blood Cancers & Disorders | Last Active: Jan 18 4:59pm | Replies (22)Comment receiving replies
Waldenstrom’s
Husband diagnosed two years ago and has tried four different oral meds but can’t get IGM below 3200. Dr is now recommending chemo. Anyone with a similar story eho has found something other than chemo that worked for them?
Replies to "Waldenstrom’s Husband diagnosed two years ago and has tried four different oral meds but can’t get..."
I am sorry to hear about your husband’s lack of response to oral meds. May I ask, when your husband had his bone marrow biopsy, prior to initiating treatment, did they discuss the mutation results with you? Those results can guide us in the treatment decisions.
The following is a link to an excellent video from the I.W.M.F. 2022 Forum by Dr. Matous . Hopefully this will answer many of your questions and give you direction for your upcoming appointment. https://m.youtube.com/watch?v=06gndR0JH-g
We are here for you if you have further questions.
Connect
Welcome @aann, I moved your message about starting chemotherapy treatment for Waldenstrom macroglobulinemia to this existing discussion on the same topic that @mrperezy50 recently started. See:
- Waldenstrom macroglobulinemia: What can I expect with chemo? https://connect.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-recently-diagnosed/
I did this so you can read previous posts and connect with helpful members like @newwaldenguy @kincarnati @jproctor @nsh @ejrquast and many others.
Aann, do you know what chemotherapy regimen they would like to start you on?