Devastated by neuropathy

Posted by pakora @pakora, Jan 29, 2023

Any advice on how to deal with neuropathy caused by carelessness of a practitioner??

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@treetop

But neuropathy is intensifying and the pain is non stop. Doctors say take B vitamins (complex). B1 in bentofida

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I am sorry you are in so much pain. I know what that is like. I endured it for a while until my neurologist put me on pregabalin ie Lyrica and Nortriptyline ie Aventyl. Now I have no pain but the pins and needles and numbness remains in my hands and feet. While, this is annoying, I will tolerate this any day when there is no pain. My doctor told me the pain would come back fast if we tried slowly going off this. Hope this helps you.

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@tessie63

I am sorry you are in so much pain. I know what that is like. I endured it for a while until my neurologist put me on pregabalin ie Lyrica and Nortriptyline ie Aventyl. Now I have no pain but the pins and needles and numbness remains in my hands and feet. While, this is annoying, I will tolerate this any day when there is no pain. My doctor told me the pain would come back fast if we tried slowly going off this. Hope this helps you.

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Can Gabapentin Witford horrible my? I was having seizures while on it.

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@tony24

I'm sorry to hear that. It sounds like maybe this happened recently? First off try to calm yourself and not overwhelm yourself with negative thinking. I understand your feelings of devastation. But try not to think about the future too much, especially if it's scary and negative thinking. Hang in there and live one day at a time and one minute at a time. There is hope for you. Take care. Go on you' tube and look up either GOOD VIBES or NINAD music for Nerve Regeneration and healing. Listen to it and try to relax. I have neuropathy and it's a bummer but living in the present moment is what keeps me sane and at peace.

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Loma Linda Medical University neuropathy Treatment Center has a INF treatment that has shown some success from what I understand I received a packet of information from them recently

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@tessie63

I am sorry you are in so much pain. I know what that is like. I endured it for a while until my neurologist put me on pregabalin ie Lyrica and Nortriptyline ie Aventyl. Now I have no pain but the pins and needles and numbness remains in my hands and feet. While, this is annoying, I will tolerate this any day when there is no pain. My doctor told me the pain would come back fast if we tried slowly going off this. Hope this helps you.

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I've been on gabapentin for a few years now started out about 300 mg a day and now it's about 1,800 mg a day I'm looking into Loma Linda's neuropathy treatment INF supposed to be a Cutting Edge treatment they sent me a information packet recently I'd had a free consultation with a Physical Therapy MD on Zoom still hoping and praying to get my neuropathy reversed or at least cease to get worse I'm 73 years old and I am working really hard on my diet and trying to keep my diabetes under control

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Also I'd like to add that I thank God that I get a good night's sleep almost every night I get 7 hours or so probably on the average and then when I wake up my feet are not hurting real bad just time to take my medicine again I just thank the Lord Jesus Christ

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@cgs

Loma Linda Medical University neuropathy Treatment Center has a INF treatment that has shown some success from what I understand I received a packet of information from them recently

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Thank you for your reply. If I can afford getting over there once a week I would. I live in Palm Springs. But it's a good suggestion. If I can't go there I might look into a similar treatment close by. There is hope for us. You gave me hope by just this suggestion. Thank you and I hope the best for you.

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How did a practitioner cause you to get neuropathy?

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Get prepared if having TKR, it does cause foot neuropathy and
from my experience, is not normally mentioned by surgeons. In
fact, the surgeon for my first knee, supposedly one of the best,
denies it’s even a possibility. That was BS.
When I had my second knee done, by another surgeon, he advised
me without asking that foot neuropathy could be a side effect.
After meeting with a general surgeon, post-surgery, he confirmed
absolutely that foot neuropathy post-surgery is an issue.

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@vinran

Get prepared if having TKR, it does cause foot neuropathy and
from my experience, is not normally mentioned by surgeons. In
fact, the surgeon for my first knee, supposedly one of the best,
denies it’s even a possibility. That was BS.
When I had my second knee done, by another surgeon, he advised
me without asking that foot neuropathy could be a side effect.
After meeting with a general surgeon, post-surgery, he confirmed
absolutely that foot neuropathy post-surgery is an issue.

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It defines is. I have neuropathy since 1week after second knee 5 plus yrs ago. If I knew I would have suffered with me knees. Surgeon says doesn’t cause it but BS is right

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I have never considered nerve damage from surgery to be neuropathy. As the recipient of 9 orthopedic surgeries, it has always been mentioned as a possible side effect and it did happen to me on surgery #5 where I lost feeling to my first 3 toes. 33 years later I have regained most feeling there - I guess time does heal some wounds.

Here is what Mayo says about nerve injury: https://www.mayoclinic.org/diseases-conditions/peripheral-nerve-injuries/diagnosis-treatment/drc-20355632

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