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DiscussionDiagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
Blood Cancers & Disorders | Last Active: Apr 15, 2023 | Replies (29)Comment receiving replies
Replies to "@loribmt - I have CLL /SLL diagnosis - will CT scan results give me a definitive..."
Good morning, @tatayababa, it’s my understand that imagining scans alone are not conclusive for diagnosing CLL or SLL. Blood cancers are located in the blood and bone marrow and don’t necessarily create tumors that would show up on the images. However a CT or MRI can be valuable in staging disease by showing involvement with lymph nodes or the spleen in the case of CLL.
CLL and SLL are essentially the same disease and treated the same. So it is entirely possible to have both CLL and SLL at the same time. The designation comes about this way: If most of the cancer cells are located in the bloodstream and the bone marrow, then the disease is referred to as CLL, although the lymph nodes and spleen are often involved. When the cancer cells are located mostly in the lymph nodes, the disease is called SLL.
If your tests are showing an involvement of the leukemic cells in both peripheral blood (blood in your veins) and also in your bone marrow and lymph glads, that is why your doctor has diagnosed you as having CLL and SLL and if treatment is needed it is the same for both.
I found a number of discussions for you with members,
@zephyr @mena2020 who have (or family members) SLL and @mmpopovich who has both CLL and SLL
Here are several links to discussions with other members who also have CLL or SLL where you’ll meet @kegraves, @grandmah @mabfp3 @dmiles
~CLL Newly Diagnosed
https://connect.mayoclinic.org/discussion/cll-newly-diagnosed/
~CLL leukemia: Just diagnosed, what can be done?
https://connect.mayoclinic.org/discussion/cll-leukemia/
From the Mayo Clinic website this informational article on CLL
https://www.mayoclinic.org/diseases-conditions/chronic-lymphocytic-leukemia/diagnosis-treatment/drc-20352433
This from Healthline.com is also very informational.
https://www.healthline.com/health/sll/symptoms-treatment-sll
Wish I could be more helpful for you regarding treatment. These conditions can be very slow to develop and quite often no treatment is required for quite some time. Your doctor has ordered the scans to so that they can stage your disease.
I know that all sounds horribly frightening. But it is just the term used to determine if treatment is required now or not. And if it is, you’re going to deal this head on and work through it! Most often it’s the fear of the unknown that really terrifies us. Once we know the answer it’s easier for our heads to wrap around the crisis and feel we have some control over our lives again.
I hope you’re able to talk this through with some of the other members. You’ll see they’re all in various stages from the Watchful waiting to having some form of treatment. I have a young neighbor man who’s in his late 30s. He was watch and wait for about 15 years. About 5 years ago, he began taking a medication that is 2 pills per day and doing really well. He shows no progression of the disease.
Waiting for the results and followup with your doctor is an anxiety situation for sure. Are you the type of person who likes to look at the results first before your consult?