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Autoimmune Progesterone Dermatitis
Autoimmune Diseases | Last Active: Oct 3, 2023 | Replies (17)Comment receiving replies
@emily793
Can I ask where you were able to get a progesterone test done? I just had a dermatologist tell me today that this maybe what I have been dealing with for the past 7 years, but he said Oklahoma doesn't offer it and neither does Dallas. Since it's so rare, he mentioned this other pt had to go to Cincinnati to get answers. At this point, I'm willing to travel if I have to. Thank you for posting this, I'm glad you found out what you were dealing with. I hope I'm as lucky as you in the future!
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@ame0810
Hi, for sure-I saw Dr Mariana Castells at Brigham and Womens Hospital in Boston. She is a well-known allergist/researcher who specializes in research and treatment of progesterone hypersensitivity. She told me that she and one other doctor in Cincinnati (may be the one your Dr. mentioned) are the only doctors who really specialize in progesterone hypersensitivity. She was able to see me and work with my allergist to do testing and try treatment protocols in my home state. (This was during the thick of Covid shutdowns so I'm not sure they could still do this now).
She is an extremely knowledgeable allergist and if your team is feeling like this is something you're dealing with, I would highly recommend having your doctor send a referral. I'm sorry you've been searching for answers so long-Best wishes!
https://physiciandirectory.brighamandwomens.org/details/1728/mariana-castells-allergy_and_immunology-boston-chestnut_hill-foxborough-jamaica_plain
Mariana C. Castells, MD, PhD
Director Drug Hypersensitivity and Desensitization Center
Director Mastocytosis Center
Professor, Harvard Medical School
Allergy and Immunology