← Return to Treatment Options for Paralyzed Diaphragm
DiscussionTreatment Options for Paralyzed Diaphragm
Lung Health | Last Active: Jun 10 2:15pm | Replies (17)Comment receiving replies
Replies to "The facebook group for people with paralyzed diaphragms has around 1100 members. I'd estimate that more..."
@nla4625
I have diaphragmatic paralysis. My symptoms :
1. Difficulty with Inspiration
2. Tension, shakiness
3. Extreme tightness in diaphragm area.
4. Leading to posture issue
5 leading to fatigue
6. Leading to slight balance issues
I found Columbia Univ. Medical Center and Dr. Ginsburg’s group. I will see him July 14 after X-rays and PFT.
Call them and they will want all relevant documentation and test results - Sniff, PFT, Chest x-rays etc.
I have even done a profile so the doctor knows I work out 4 days a week , high protein diet - everything to show I am trying to get stronger, trying to be a good candidate for surgery and hoping my symptoms match procedures that can save me. I have been dealing with this for nearly 4 yrs and it has completely limited my life.
Getting an appointment will take a while. Once you get it I would plan for an overnight and there is a hotel across the streeet.
Connect

P.S. Who diagnosed your paralyzed diaphragm? Did you have a SNIFF test, which is the definitive test that determines if the diaphragm is paralyzed. The doctor who ordered and evaluated the SNIFF test should be able to help you find a qualified thoracic surgeon too.