1. < Lung Cancer

Anyone taking Lumakras (sotorasib)?

Posted by schmeeckle64 @schmeeckle64, Feb 7, 2023

Hi! I am just curious if anyone is taking Lumakras. If you are what have your side effects been? How long have you been on it?
Thank you!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 13, 2023

@schmeeckle64, I believe fellow members @lls8000 @rlogan and @nae may have experience with Lumakras (sotorasib).

Has this been suggested for you?

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Mentor
Lisa, Volunteer Mentor | @lls8000 | Feb 13, 2023

Hi!, I am on a different inhibitor (alectinib) for ALK positive lung cancer, stage IV.
Have you started this med? I hope you are doing well, with minimal side effects, and the meds are effective for you for a long time. The inhibitors can be a great benefit for quality of life, and extending our lives, but it’s never long enough.
More research is needed!
Take care, Lisa

REPLY
1 reply
schmeeckle64 | @schmeeckle64 | Feb 19, 2023
In reply to @lls8000 "Hi!, I am on a different inhibitor (alectinib) for ALK positive lung cancer, stage IV. Have..." + (show)
@lls8000

Hi!, I am on a different inhibitor (alectinib) for ALK positive lung cancer, stage IV.
Have you started this med? I hope you are doing well, with minimal side effects, and the meds are effective for you for a long time. The inhibitors can be a great benefit for quality of life, and extending our lives, but it’s never long enough.
More research is needed!
Take care, Lisa

Jump to this post

Thank you for your response. I have been on Lumakras for a year now. The only side effect that I am having right now is diahrea. Usually it is just in the monrning. Really odd. I also have stage IV lung cancer. Can you please share with me what kind of treatments you have had so far and how long you have been diagnoised? Totally agree with you, more research is needed. Wishing you the best! Christie

REPLY
1 reply
Mentor
Lisa, Volunteer Mentor | @lls8000 | Feb 20, 2023
In reply to @schmeeckle64 "Thank you for your response. I have been on Lumakras for a year now. The only..." + (show)
@schmeeckle64

Thank you for your response. I have been on Lumakras for a year now. The only side effect that I am having right now is diahrea. Usually it is just in the monrning. Really odd. I also have stage IV lung cancer. Can you please share with me what kind of treatments you have had so far and how long you have been diagnoised? Totally agree with you, more research is needed. Wishing you the best! Christie

Jump to this post

Good morning Christie, when I was diagnosed almost three years ago I started taking alectinib right away. The drug quickly cleared up all of the symptoms that I was having from the cancer, it was amazing. I do have some side effects from the drug (gastrointestinal ups and downs, general spaciness, etc.) but nothing intolerable. I know the drug won’t be effective forever, but for now it’s allowing me to live a good life.
Take care, Lisa

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