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Gynecologic neuroendocrine metastasized to lungs: Need a specialist
Neuroendocrine Tumors (NETs) | Last Active: Feb 21, 2023 | Replies (15)Comment receiving replies
No Dr Dhafique basically said he agrees with the Dr at Orlando Health that not much can help mom. She’s been basically abandoned by the drs. She is home with hospice and I feel so helpless watching her deteriorate daily with no treatment, nothing. I hear good things with immunotherapy and injections, keytruda so many thing yet mom just is home dying slowly a horrible death.
Replies to "No Dr Dhafique basically said he agrees with the Dr at Orlando Health that not much..."
I am so sorry to hear this. I helped with a friend in hospice and my-mother-in-law as well. Hospice helped so much. We relied on the nurses, doctors, and wonderful chaplains. If it lines up with how you approach things, use the resources available. I was also a hospice volunteer and really connected to "my" patient. Sometimes hospice can provide massage, music, volunteer vigil, and more. And most importantly--pain control. Right now I'm facing a poor prognosis and very limited time but I must say that knowing I can go into hospice is a huge comfort. I wish you all the best.
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Hello @nwilson03,
I am so sorry to hear of your mom's terminal condition. How difficult this must be for you!
You say, "mom just is home dying slowly a horrible death." Is hospice care keeping her comfortable? If not, you can certainly request more help with her pain or discomfort. Will you post an update and let me know how you are coping?