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Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease

Caregivers | Last Active: Aug 10 9:15am | Replies (109)

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@amandajro

Hello @erichersh and welcome to Mayo Clinic Connect. I wanted to help connect you to other members who are also caregivers going through ALS with a family member so you will notice I have moved your post here:
- Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease: https://connect.mayoclinic.org/discussion/als-2/

Members like @722jo @allegro @julesa @bethclardy22 @laurahquayle11 along with @hopeful33250 may be able to come back in and share about their neurologist.

While we wait for others to come in, I'd thought I'd share more about ALS care at Mayo Clinic if interested:
- Amyotrophic lateral sclerosis (ALS) - Care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/care-at-mayo-clinic/mac-20354030

Are you set on finding care in a certain part of the country or open to travel anywhere?

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Replies to "Hello @erichersh and welcome to Mayo Clinic Connect. I wanted to help connect you to other..."

We are totally open to travel anywhere for his treatment and evaluation. We have an appointment at John's Hopkins in a few weeks, and would also consider Mayo Clinic. My son has an 8 year old son and was recently remarried. Our whole family is devastated and could use all the help we can get.😓

I need this too , my husband was just diagnosed 3 weeks ago! We are in Columbus area of Ohio. How do we get another opinion through Mayo?