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Lung transplant wait list

Lung Health | Last Active: Feb 24, 2023 | Replies (15)

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@shariscorner

Hi sb19. Since this was due to Covid they do not know if the PF will continue to progress. I do have pneumonia all the time. I keep getting sick at the drop of a hat, and I rarely go places that aren’t a doctor’s office or hospital. The tests show scarring all throughout. There is more white than black on the scans. I had cancer 5 months before contracting Covid, so many people thought I was ineligible for 5 years from July 2021. Mayo Rochester accepted to see me after I was one year post cancer, and I did 2 weeks of testing and a check off list and here I am. I would still check into it even with the diabetes. I know people in my FB support group zoom meetings that have it and were transplanted. They were completely decommissioned and about to pass without the DLT. Checking into it won’t hurt. You can always say no at any time in the process. Best of luck and health!

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Replies to "Hi sb19. Since this was due to Covid they do not know if the PF will..."

Thanks for the info. The doctors cannot tell us if the PF will progress since his was also due to COVID. If we could find a way to clear up the inflammation that is in rest of his lungs, I don't think he would need to go through a lung transplant. He has also had pneumonia a couple of times this past year since getting COVID. However, he cant stay "stuck"--no better, no worse. Just like you, only goes to doctors' offices and rehab.