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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

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@loribmt

Hi @gina5009 The indignities we experience as we age don’t seem fair, do they? It’s wonderful that you’re still able to be living independently at 92…though I am very sorry for the loss of your family members over the years. Especially your children. I always remember my grandmother saying parents should never have to bury their children because there’s no pain like it.
You’ve been through and endured quite a few medical adventures over your lifetime. You surely didn’t need to have trigeminal neuralgia tossed into that mix. It’s one of the worst causes of facial pain. Years ago there wasn’t much that could be done for the pain but there have been several break throughs in treatment.

There are a couple of informational articles that you might want to read:
https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/diagnosis-treatment/drc-20353347
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https://www.healthline.com/health/treatment-for-trigeminal-neuralgia

Trigeminal neuralgia – Symptoms and causes:
https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/symptoms-causes/syc-20353344

— Trigeminal neuralgia: What helps stop the pain?: https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-5/

— Trigeminal Neuralgia*: https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/

Have your symptoms eased at all?

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Replies to "Hi @gina5009 The indignities we experience as we age don’t seem fair, do they? It’s wonderful..."

Thank you for your thoughtfulness and caring. Yes, I have run the mill on medication, but I do have one I am able to tolerate Pregabalin. I take it twice a day and it helps a great deal. When I have mild pain, I paint the gums with Ambesol (baby teething medication), which again helps a lot. Following this diagnosis I suddenly had the M factor in my blood and they have diagnosed Mcus so I now have to be monitored to see how this progresses, so life is a waiting game. I am glad to have had what I had, and just continue to do the best I can with what God still decided to give me. Thank you for the reading references, I will check them out today. Have a great weekend.
Georina