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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@gina5009

I suddenly developed Trigeminal Neuralgia (most painful thing I have ever had). Neurologist requested some lab work and the M factor appeared. As you say, I am currently seeing a Hematologist in 3 month intervals with lab work. As I have said at 92 and all the other life medical problems, this just seems like one more blip on the horizon. I have buried almost all of my family including my daughter, and have only my son to worry about now, so I am happy to have one more day and the blessings of God. I have two knee replacements, two hip replacements, a shoulder replacement, and a double Mastectomy (one a Radical) and I am still living pretty much on my own. I am probably one of the luckiest woman alive. Thank you for your kind words, they certainly help make it one more day.

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Replies to "I suddenly developed Trigeminal Neuralgia (most painful thing I have ever had). Neurologist requested some lab..."

Hi @gina5009 The indignities we experience as we age don’t seem fair, do they? It’s wonderful that you’re still able to be living independently at 92…though I am very sorry for the loss of your family members over the years. Especially your children. I always remember my grandmother saying parents should never have to bury their children because there’s no pain like it.
You’ve been through and endured quite a few medical adventures over your lifetime. You surely didn’t need to have trigeminal neuralgia tossed into that mix. It’s one of the worst causes of facial pain. Years ago there wasn’t much that could be done for the pain but there have been several break throughs in treatment.

There are a couple of informational articles that you might want to read:
https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/diagnosis-treatment/drc-20353347
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https://www.healthline.com/health/treatment-for-trigeminal-neuralgia
Trigeminal neuralgia – Symptoms and causes:
https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/symptoms-causes/syc-20353344
— Trigeminal neuralgia: What helps stop the pain?: https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-5/

— Trigeminal Neuralgia*: https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/

Have your symptoms eased at all?