AMAZING!! 🥰
My Transplant Connect family is reliably wonderful to me. You all join in to help and I can't thank you enough.
@jennifer0726 Thank you so much for taking the screen shots of the Mayo portal and giving me step-by-step instructions. It's interesting to learn how it's done in Rochester to keep up with the volume. It sounds like that nurse group process works well.
@cmael Thank you so much for the spreadsheet on when to call your PCP and when to call Transplant. That's great to see!
@myfablife Thank you for sharing your positive experience with your coordinator and to never take Ibuprofen. Good info!
@caretakermom Thank you for sharing your similar experience of feeling like the team may be too busy and overwhelmed with the volume. (I get the feeling that I am bothering her when I call).
I am pretty sure that Florida does annual check up visits forever. I am surprised that your Arizona coordinator said that after 3 years, there are no annual check ups at Mayo Phoenix. I think there are additional protocol biopsies, etc after 3 years. I wonder if you are getting good information that the annuals stop at 3 years. At your annual, maybe ask the doctor?

Anyway, my actual medical care at Mayo has been extraordinary so I am grateful that I had the transplant at Mayo and be under their care. Also, I am very thankful to have a team of transplant friends on Connect to lend emotional support and share what we know.... Love you guys!