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I can't get properly diagnosed and I'm spiraling

Neuropathy | Last Active: Feb 19, 2023 | Replies (35)

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@nukhan

Sorry to hear you are going through this. I have similar situation. When my feet burning sensation started in 2017, the first neuro physician told me that the burning sensation as per my lumbar MRI was due to spin issues. I initially focused entirely on my back issues until Mayo Clinic diagnosed me after one year with ideopethic small fiber neuropathy. According to them while I do have spine issues, they are not serious enough to cause burning sensation, severe pain and numbness of such degree. Since then I have been experiencing progressive deterioration on a daily basis despite all kind of remedies and therapies including major diet changes, intermittent fasting and supplementation for extended period of time. The situation now is that mobility has become a huge challenge for me. I cannot walk from my bed up to the bath room. I am confused whether my first neuro physician was right in blaming my spine to be the culprit becsuse I didn't see any improvement after being diagnosed by Mayo clinic. I can safely say that one of them misdiagnosed me. I am now thinking that I need to start concentrating on my spine issues again although I don't have any major back pain.
I wish you and all those suffering from this debilitating disease a permanent relief.

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Replies to "Sorry to hear you are going through this. I have similar situation. When my feet burning..."

Nazir - Glad to hear you don't have major back pain. My situation is similar except in trying to walk distances...about 3 - 4 blocks. I'll sit for about 2 minutes get up and move on. At times, I've used CBD cream which helps. Mobility is an increasing challenge. According to my wife, I am stubborn which in this case I remind her can be a benefit because I will push to keep moving. I think it is hard to look back and second guess what could have been when today and what we do going forward is more important. Keep moving the best you can and stay safe!