Hi @hello1234 I message the post transplant team of nurses at Mayo, not a coordinator with questions.
I have never had them refer my questions to my local PCP and I don’t have a local nephrologist. The team is usually very responsive. I think technically they have a few days to get back to you, but usually it’s less than 24 hours.
I am glad you got clarification. Tooth pain is awful. Hope you are feeling much better now!

Hi @hello1234, we did have a post transplant coordinator assigned to us and she was very good at responding. But lately she has been either very busy or "weaning" us off, since my hubby will be 1 year post transplant soon. I like her because she is familiar with hubby's medical situation and very responsive to our requests. But the 2x we got random post transplant nurses who called to give us feedbacks on lab reviews because Mayo is still following hubby re CMV. I had questions on one of the labs and the nurse just said "I don't know" you can ask when at your 1-year appmt!!! Like she couldn't wait to get off the phone so I didn't feel comfortable asking more questions.
At your Mayo Clinic in Florida(?), do you continue to have annual checkups with them after 3 years? After 3 years at Mayo Az, they do not recommend anymore annual checkups and you're "kicked to the curb". They are overwhelmed with volume and impossible for them to follow patients indefinitely, I'm told by our nurse coordinator.

I was told many years ago that nsaids, Ibuprofen like Motrin, Advil etc is hard on the kidneys. After my transplant, I was told again that Tylenol is the only pain killer that I should take, unless my doctor makes an exception.