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Any other caregivers of Frontotemporal Degeneration out there?

Caregivers: Dementia | Last Active: Apr 4, 2022 | Replies (22)
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@wbuawxman

I could use that too. I'm very early along and just have a baseline of my frontotemporal lobes. Of course, I'm hoping that I just have small frontotemporal lobes! I think it's called the "denial" phase.

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Replies to "I could use that too. I'm very early along and just have a baseline of my..."
Colleen Young, Connect Director | @colleenyoung | Jan 9, 2017

Welcome to Connect, @wbuawxman.
This message has been moved to the Caregiver's group because of the title that Limbolady gave it. However, I believe you are writing from the perspective of someone who has frontotemporal degeneration. I understand the denial phase. It is hard to accept.
Is this a recent diagnosis for you?

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wbuawxman | @wbuawxman | Jan 9, 2017

Yes it is recent .... last August/September through CAT scan and confirmation MRI. I'm still able to work full time; the diagnosis was based on smaller than normal frontotemporal lobes in my brain that came out of those procedures. Hence the uncertainty I'm expressing.

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wbuawxman | @wbuawxman | Jan 9, 2017

Is there a more appropriate place for me to be to discuss FTD diagnoses, either here or on (maybe) the FTD site?

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