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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Dec 16 1:26pm | Replies (400)
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@learnandlive

Hello albertedward, was wondering what your new drug was ? I recently started Jakafi and it also is expensive but i tolerate Jakafi better than Hydrea.

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Replies to "Hello albertedward, was wondering what your new drug was ? I recently started Jakafi and it..."
inevanmac | @inevanmac | Mar 5, 2023

Same with me

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albertedward | @albertedward | Mar 5, 2023

I have not started ruxolicinid yet as you have to get approved because the cost.I don't know much about it so for now on 1000 hydroxyurea and blood drops .But lately feeling somewhat better.Not going down to my knees as much and as long as I don't get excited I almost feel normal.Yes I do have some sores in my mouth but much better and on my back side.I guess we all just keep adjusting and hope for the best .Good luck to all of you.

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