Anyone been on Prolia for an extended period? 5-10 years?

Posted by leeosteo @leeosteo, Feb 7, 2023

Has anyone been on Prolia for an extended period? Say 5-10 years?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@jb123mayo

I took Fosamax for a few years for osteopenia. Then I went off it. A few years later when I was menopausal my bone density dropped. That's when I went on Prolia.

This is the kind of K-2 I use. My understanding is that the MK-7 form is better absorbed. I buy it either at Iherb or Amazon depending on who has the better deal.
https://www.iherb.com/pr/now-foods-mk-7-vitamin-k-2-100-mcg-120-veg-capsules/78992
I use this type of magnesium citrate, as that form is supposedly better absorbed:
https://www.iherb.com/pr/now-foods-magnesium-citrate-200-mg-250-tablets/691
Huge tablets but best value.

NOW foods has a good reputation for supplements. My internist likes them and they are quality assured. I always get them via mail order--easier and cheaper.

I hope talking with an endocrinologist will clarify the whole medication situation for you. I remember also feeling unsure about the whole thing at first. Took me three months to get a second opinion and do my research. Then I felt better about moving forward--I hope you do, too.

Jump to this post

123mayo, thanks for the supplement info. I'll look into it.

One other question. How did your doctor determine when you should stop Prolia?

REPLY

My most recent bone density results have improved so much that I am now in the normal range for a woman of my age. My doctor said I probably didn't need to stay on Prolia and could transition to Reclast and see how that works for me.

REPLY

jb123mayo. Sorry for asking that last question again. You did mention how your doctor decided to transition you off Prolia in a previous post.

Another question. Did you meet with a nutritionist to determine what supplements you needed? I'm at the beginning of trying to figure out my diet. My PCP suggested I take only my multivitamin and stop taking a nightly calcium supplement. Evidently my Vit D is outside the range on the high side. So now I'm trying to figure out how to get calcium via food and make up for needed K, Magnesium and other. My experience with doctors are they fall short on nutrition advise.

REPLY
@leeosteo

jb123mayo. Sorry for asking that last question again. You did mention how your doctor decided to transition you off Prolia in a previous post.

Another question. Did you meet with a nutritionist to determine what supplements you needed? I'm at the beginning of trying to figure out my diet. My PCP suggested I take only my multivitamin and stop taking a nightly calcium supplement. Evidently my Vit D is outside the range on the high side. So now I'm trying to figure out how to get calcium via food and make up for needed K, Magnesium and other. My experience with doctors are they fall short on nutrition advise.

Jump to this post

I hope you don't mind me chiming in. My go to calcium foods are cooked kale (easier for me to eat), arugula, dried figs, mission or golden California, broccoli, bok choy, then beans, chicken peas and lentils, and of course dairy.
I write everything down as I eat so I can keep track.
Good luck on your calcium rich diet!

REPLY
@mistea

I hope you don't mind me chiming in. My go to calcium foods are cooked kale (easier for me to eat), arugula, dried figs, mission or golden California, broccoli, bok choy, then beans, chicken peas and lentils, and of course dairy.
I write everything down as I eat so I can keep track.
Good luck on your calcium rich diet!

Jump to this post

You are welcome to chime in... the more the merrier! I've been writing everything down also but sometimes finding the right nutrient numbers. By "mission or golden California" are you referring to raisins?

In a different post someone said their using http://www.cronometer.com to track food intake. Oh another one, http://www.myfitnesspal.com. I haven't looked at either yet.

REPLY
@leeosteo

You are welcome to chime in... the more the merrier! I've been writing everything down also but sometimes finding the right nutrient numbers. By "mission or golden California" are you referring to raisins?

In a different post someone said their using http://www.cronometer.com to track food intake. Oh another one, http://www.myfitnesspal.com. I haven't looked at either yet.

Jump to this post

I'm so low tech, I use pen and paper!
Sunmaid has dried California golden figs. 8 figs will give you 120 mgs of calcium. So as long as you don't mind a lot of fiber, 8 gms of fiber in 8 figs, your good! Also, 20 almonds have about 80 mg of calcium.

REPLY

Thanks for the clarification on figs. I'll look into them. I eat prunes for Vit K and potassium. 5-6 are the recommended number of prunes/day for bone health. I only eat 3 daily.
https://www.medicalnewstoday.com/articles/prunes-for-osteoporosis

REPLY
@leeosteo

jb123mayo. Sorry for asking that last question again. You did mention how your doctor decided to transition you off Prolia in a previous post.

Another question. Did you meet with a nutritionist to determine what supplements you needed? I'm at the beginning of trying to figure out my diet. My PCP suggested I take only my multivitamin and stop taking a nightly calcium supplement. Evidently my Vit D is outside the range on the high side. So now I'm trying to figure out how to get calcium via food and make up for needed K, Magnesium and other. My experience with doctors are they fall short on nutrition advise.

Jump to this post

Wondering how you got your D so high… I’m struggling to keep it in low 30’s ( just made it into sufficient)! I take 1000 2x daily but get nauseous if I up it but I want to get to 3000 daily

REPLY
@leeosteo

jb123mayo. Sorry for asking that last question again. You did mention how your doctor decided to transition you off Prolia in a previous post.

Another question. Did you meet with a nutritionist to determine what supplements you needed? I'm at the beginning of trying to figure out my diet. My PCP suggested I take only my multivitamin and stop taking a nightly calcium supplement. Evidently my Vit D is outside the range on the high side. So now I'm trying to figure out how to get calcium via food and make up for needed K, Magnesium and other. My experience with doctors are they fall short on nutrition advise.

Jump to this post

I just recall doing a lot of research. One person I follow on Facebook is a retired medical librarian from the Cleveland Clinic who also has osteoporosis. She follows the medical literature and posts about nutrition. But there is a lot of other info out there--just be sure you are following legitimate sources. My doctor also has approved the supplements I take.

Collard greens are also a good source of calcium, and unlike some other greens (spinach) don't contain large amounts of oxalates which interfere with calcium absorption.

REPLY
@jb123mayo

I just recall doing a lot of research. One person I follow on Facebook is a retired medical librarian from the Cleveland Clinic who also has osteoporosis. She follows the medical literature and posts about nutrition. But there is a lot of other info out there--just be sure you are following legitimate sources. My doctor also has approved the supplements I take.

Collard greens are also a good source of calcium, and unlike some other greens (spinach) don't contain large amounts of oxalates which interfere with calcium absorption.

Jump to this post

This is the facebook link for the medical librarian if you are interested. You can also search her feed for things like "magnesium" or "k-2" and find a lot of info. Because of her background she only follows legitimate medical sources.
https://www.facebook.com/profile.php?id=100038802943658

REPLY
Please sign in or register to post a reply.