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Acquired Von Willebrand syndrome
Blood Cancers & Disorders | Last Active: Feb 17, 2023 | Replies (3)Comment receiving replies
No treatments. I am interested in learning the underlying cause and to find out if I should be seriously concerned.
Replies to "No treatments. I am interested in learning the underlying cause and to find out if I..."
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Anytime you have a blood condition it should be taken seriously. From everything I’m reading about AVWS it can be complicated to diagnose, as you’re already finding out.
Acquired Von Willebrand Syndrome is usually associated with an underlying disorder and it looks like your doctor has been trying to determine the cause.
I found a good article that was quite informational on AVWS. Hopefully it gives you some insight.
https://ashpublications.org/blood/article/117/25/6777/24352/How-I-treat-the-acquired-von-Willebrand-syndrome
I really think your idea of the second opinion is a very sound.
Again, as in my earlier post, I’d suggest getting a consult with Mayo Clinic (all the info is in the previous post) a teaching college or larger medical facility near you. It would be worth the further investigation.