Hello @erichersh and welcome to Mayo Clinic Connect. I wanted to help connect you to other members who are also caregivers going through ALS with a family member so you will notice I have moved your post here:
- Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease: https://connect.mayoclinic.org/discussion/als-2/

Members like @722jo @allegro @julesa @bethclardy22 @laurahquayle11 along with @hopeful33250 may be able to come back in and share about their neurologist.

While we wait for others to come in, I'd thought I'd share more about ALS care at Mayo Clinic if interested:
- Amyotrophic lateral sclerosis (ALS) - Care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/care-at-mayo-clinic/mac-20354030

Are you set on finding care in a certain part of the country or open to travel anywhere?

My Dad passed many years ago with ALS and he was 56 years old. To young so I feel for you and your son. I pray you find some help on this page and from so many people that are fighting this. I have never understood the bottom line or underlying cause of this. One of my nieces may have ALS. she is still getting tested now at 67. Prayers for you.