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The maddening problem of SFN

Neuropathy | Last Active: Feb 22, 2023 | Replies (16)

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@johnbishop

Hello @phillyrich19, Welcome to Connect. You are not aging alone and there is a lot of hope out there. You just have to find it. I think a lot of people are unsympathetic because they don't know the feeling or lack of feeling. I actually found Connect because I also was told there are no treatments that help with the numb feeling. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/.

To answer your question about what you can do to help yourself - learn as much as you can about your condition and what treatments are available that offer some relief. Here are two sites that I think can get you started:
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.
--- Presentations & Videos: https://www.foundationforpn.org/living-well/fpn-media-center/.

Here are a few other discussions you might find helpful:
--- Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/
--- Neuropathy & Exercise: https://connect.mayoclinic.org/discussion/neuropathy-exercise/
--- Ketogenic Diets and Pain: https://connect.mayoclinic.org/discussion/ketogenic-diets-and-pain/.

Do you do any hand exercises to help with playing the piano?

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Replies to "Hello @phillyrich19, Welcome to Connect. You are not aging alone and there is a lot of..."

Thank you for all the information. It is much appreciated.

Main issue in playing piano is to keep the hands relaxed. Hard to do when you have to focus extra hard just to play. I do squeeze a rubber ball for strength as I have also had bi lateral carpal tunnel surgeries. Also, learn to accept limitations.