I wish you both luck. It took me such a long time to go through the testing before my regular pulmonologist referred me for a transplant that by the time I went, I was in a wheel chair on level 6 oxygen. Thankfully I only needed to wait another 4 months for a beautiful pair of lungs. I was in the hospital for 1 week prior to getting my tx to try to get more weight on and on 30 liters of oxygen. I was so happy when they came in at 7AM to tell me that they found a pair of lungs for me. I started to get worry at 6PM when they said that there was an issue with the donor's family. However, I received the first one at 11:30PM. So it can take a while even after they have been found. When I was first listed my rating was 48 and before I had tx was 75. What is your rating?
Try to keep active as much as possible, it will help you in the long run.