Hello @mtevcm Acquired Von Willebrand Syndrome is relatively rare. It helps to know you’re not alone so I’m happy to welcome you to Mayo Connect where I was able to find two other members associated with this condition in our forum. @koryw208, who has AVWS and @susanellis, whose daughter has this syndrome. They may be able to share some insights with you.

This conversation ~High Platelets~ is where @koryw208 discusses her experience.
https://connect.mayoclinic.org/discussion/high-platelets/?pg=6#comment-792936
There are quite a few replies with @susanellis in this discussion regarding,
High platelet count: What does this mean?
https://connect.mayoclinic.org/comment/251998/
Since this is such a rare condition, I’d encourage you to get that second opinion at a larger teaching institution such as Mayo Clinic. Mayo has 3 campuses in the US, Rochester, Mn, Jacksonville, FL and Phoenix/Scottsdale AZ.

Click on this link to lead you to the Mayo Clinic main page. You’ll find numbers for the campus most convenient for you. An appointment request starts with a simple phone call.
http://mayocl.in/1mtmR63
Are you currently on any treatments?