← Return to TS-HDS Antibody and Small Fiber Neuropathy

Discussion

TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)

Comment receiving replies
@lonestarmom1

I’ve been diagnosed with SFN. I was completely healthy but after taking my second COVID vaccine my symptoms started that night. I deal with burning neuropathy, pain, vision problems and muscle tightness. I am positive for TS HDS (15,000) and want to know if anyone has had success with IVIG? I’m also curious if this is a progressive condition or if people stay pretty stable?

Jump to this post


Replies to "I’ve been diagnosed with SFN. I was completely healthy but after taking my second COVID vaccine..."

Hi @lonestarmom1, Welcome to Connect. That's a good question. I do think neuropathy is a progressive condition but the real question is what does that mean in time. I don't think anyone can answer that but that's just my non medical opinion. I was also told my small fiber PN was progressive and since I don't have any pain with it, just numbness, I was told just watch it and let us know if it gets worse. So the bottom line is it really helps to be your own advocate and learn as much as you can about your condition and what treatments help provide quality of life.

Here are a couple of other discussions you might find helpful:
--- Neuropathy post-Covid infection: Is there treatment that helps?
https://connect.mayoclinic.org/discussion/neuropathy-in-feet-post-covid/
--- IVIG Infusions:
https://connect.mayoclinic.org/discussion/ivig-infusions/.
Have you started or tried any treatments for the neuropathy symptoms?

Hello! Which lab performed your TS-HDS blood work? Only Washington University in St Louis, MO, is the lab my neurologist knows of but they recently discontinued offering the test. Mayo Clinic does not offer it, either. So, if you have found a lab, I would so appreciate knowing. Thanks!