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← Return to Transplant: BK Virus
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Transplants | Last Active: Apr 16 10:39pm | Replies (120)
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Im on 5mg steroid & 50mg am & pm Cyclo. It has been minimal facial & my head of hair is thicker, had lost alot prior frm tac. I did try infusions of cidofovir but that didn't work either. BK inflamed/damaged my kidney, creatnine started going up at 8m & at 1yr 5m I went back on dialysis. Will be on dialysis 2yr in April
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My BK level is lowest it has ever been at 220, highest was 600,000's in blood. Im back on the list inactive until it clears for 3m, then I can go active on transplant list. I originally failed due to pkd. My advice to you is do what you enjoy to clear your mind, so you can have peace during this battle because it can take over. That is really important. I was able to reach my peace with meditation & excercise/stretching. Praying for you!