My blood work flipped from normal to extreme abnormal

Posted by zebra2022 @zebra2022, Feb 7, 2023

I've been looking back at all my labs and all my diagnosis since the beginning of September. Before September all was normal and I didn't have any medical issues. However, when I went to the emergency room in the beginning of September for a headache (migraine) because I couldn't keep anything down, I was admitted for heart failure. Since then all my labs completely flipped from normal to extreme abnormal all within a few days. I am completely baffled as to what caused the complete flip. From all of it I was diagnosed with cryoglobulinemia, had heart failure, high blood pressure, developed stage 3 kidney disease, hypogammaglobulinemia, amongst other things. I can't seem to figure out what caused the extreme flip with my system. I had no warning, no symptoms, nothing that would indicate what I've endured since September. Now most all of my labs are back to my pre-September normal levels. Has anyone else had this happen to them or does anyone know who to even ask as to even find out what would cause this?

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Your doctor has not been able to answer these/this question for you? That's the first place I would start. Good luck to you🙏

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zebra2022 @zebra2022, normal stuff in our family history; I'm so sorry your going through this. How frustrated ! We have weird wacky stuff happen in our family line. (Dec 2022) My 6th sister Grandchildren landed in hospital age 1 - girl and age 4 - boy. (He had crazy lab work; told he had leukemia (screamed, couldn't move his arms or legs) Weird swelling and NOT able to eat anything, vomiting (crying and screaming for hours) caught a cold, had to use oxygen (After week, magically all symptoms disappeared) Everything is normal. He sister did the same thing in Jan 1st Feb 1 = ventilators and hospitalized for asthma, then sepsis (then pneumonia) She just got home Feb 5 on tubes trouble eating and drinking. This happens a lot of our family members: Near death and turn around like nothing ever happen. Doctors hate "our family" Cousin - brother-in-law are doctors. "Rare disease and unsolved mysteries of the medical world. My sister age 40 broke her leg, went to doctor - 2 hours before she died Aug.8 2019, "doctor told her her symptoms were all in her head" but corner - autopsy; dozens of blood clots and think blood - non-allergy angioedema swelling (I watched my sister suffer all her life with weird symptoms; Doctors acted like our family is making the symptoms up- (my dad family; 3 out of 10 made it to adulthood and most died as teenagers with weird unexplained symptoms " Lucy died of un-explain blood disease" - now the generation is following same pattern. Technology has come along ways: there are still thing we haven't discovered "Welcome to unsolved medical mysteries"

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Hi @zebra2022, did you get any answers?

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@colleenyoung

Hi @zebra2022, did you get any answers?

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not really. but im not going to stop asking

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I am glad you numbers came back to normal.Must be scary for the sudden change.Did you have covid or any other things going on.I just got P V in September and was a real surprise aswell .Good luck with it.

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@albertedward

I am glad you numbers came back to normal.Must be scary for the sudden change.Did you have covid or any other things going on.I just got P V in September and was a real surprise aswell .Good luck with it.

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I did have covid early last year. Felt just like a normal allergy thing for me. i narrowed when my labs and stuff changed. sometime between july and september. the only thing that changed was i was introduced to Enbrel. the whole experience and diagnosis of cryoglobulinemia has been so perplexing and i still wonder what triggered the extreme flip in my system. My labs may be sorta back to normal but my system is jacked and Im still relearning my new flares from all this.

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