Hello from PA. I have a history that may give you some help with perspective of your cancer. From 2002 until 2004 I was followed for MGUS. From 2004 - 2016 I was followed by local hematologist/oncologist for smoldering IgG Kappa every 2-3 months here and annually at Mayo Clinic Rochester. In 2016 my labs reached the parameters set by my Mayo physician and treatment was initiated. My two oncologists continue to coordinate care. Today I am in remission and being followed very closely. Having said all this, my overall take has been my choice of personal involvement. I have relied on my doctors for answers as I learned everything possible along the way. Armed with information, I became my own best advocate with all levels of testing and care. And I was always aware of what my choices were. Between appointments etc. I enjoyed life on my own terms. Operative word, “enjoyed”! I chose not to be held hostage by fear of something that might never happen. You, too, have choices. While those of us here on Connect must leave medical advice to your medical care providers, we can help you navigate the systems, offer ideas for direction from our own experience, and support you along the way. Will you let us know how things progress for you and continue to let us know where we can help? Peace, Nancy