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I have smoldering Myeloma. Does anyone have this diagnosis?
Blood Cancers & Disorders | Last Active: Jun 9 9:26am | Replies (108)Comment receiving replies
I was diagnosed with both Amylodosis and smoldering myeloma in June 2019 any hints on diet or activity I should be doing?
Replies to "I was diagnosed with both Amylodosis and smoldering myeloma in June 2019 any hints on diet..."
@pro Welcome to Mayo Connect! We're glad you found us. We are patients/caregivers/family members here, offering strength and support to others, sharing what has [and has not!] worked for us. We cannot give medical advice. But we know that each of us is different and what works for one is not successful for another.
For information on amyloidosis try this website from the Amyloidosis Foundation https://amyloidosis.org/facts/ You didn't mention which type you have, so there are several options to look at and read up on. The response by @lkzvlk gives a link for information from Mayo Clinic
I was diagnosed with smoldering multiple myeloma officially in Nov 2019, and have quarterly testing done. Here is the link for Mayo Clinic information on multiple myeloma https://www.mayoclinic.org/diseases-conditions/multiple-myeloma/symptoms-causes/syc-20353378
From WebMD, here is their article about diet and multiple myeloma https://www.webmd.com/cancer/multiple-myeloma/diet-blood-cancer-myeloma And from Medical News Today, their thoughts on diet https://www.medicalnewstoday.com/articles/321081#diet-tips
One thing to remember, is if you have other existing health concerns, you may need to "tweak" these suggestions to match to you individually. For example, I am also a Stage 3b kidney patient, so I need to watch my dietary protein intake, plus some other foods. A good rule to think about is the eat healthy, get proper rest and exercise, keep stress levels as low as possible.
How are you feeling these days? Are you seeing your specialist every few months?
Ginger
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I have smouldering myeloma (mcus) they have never said any diet for this but check out mayo clinic diseases and symptoms. It give you also for https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178. I don't anything about that. Sounds like might be related but that is just a thought on my part could be totally wrong. I would do more research on some medical sites you trust. But keep trying they have done so much for mcus in the last few years.