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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)Comment receiving replies
My husband recently diagnosed too. His symptom was big toe pain. Have just done phlebotomy so far. We’re still processing what this all means. I was able to get him into an MPN specialist in March. I really like these resource websites (including this mayo site) -
https://www.patientpower.info/myeloproliferative-neoplasms
https://www.pvreporter.com
Replies to "My husband recently diagnosed too. His symptom was big toe pain. Have just done phlebotomy so..."
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Strangely this is how my PV started with big toe ache
I am now in my third year roughly two phlebotomy’s a year and on hydro tabs a few aches at night but controllable and I am managing this condition so far