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I was just going to ask you if you experienced the paralysis. It appears that you do I don’t get that I get, among a lot of other symptoms, total numbing on my left side and just so many other things and yeah, they can get so intense as it spreads to my entire body that I’m put down in a chair for a day to days. Then there are several days of recovery. One of my triggers, which I know is a massive trigger, is using my phone like I am right now. Being on the Internet is risky on my phone or the computer, I can’t watch television, reading can be a trigger. Of course the only way to verify this is still locked in a dark room for two weeks. That’s not gonna happen. I experience this day in and day out and I pray that you get to the bottom of what you’re dealing with.
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Thank goodness I'm not having your level of symptoms. My worst ones were paralysis on mainly the right side and slurred speech. Not sure of the trigger, as the first time it happened, I was just falling asleep. My wife and I were both convinced I was having a stroke, but by the time the EMT's got here, it was over. She drove me to the ER and they did some tests, which all came back negative. My first clues were just some numbness in my right leg and arm and I just though I had pinched a nerve and they had gone to sleep, but went to the ER anyway . That was when they kept me overnight, did the CT and MRI and found no blood clots, so ruled out strokes. The longest my episodes have lasted is 30 minutes and that has only been maybe once or twice. 10-15 minutes is the norm, thankfully. I just sit quietly and they go away. I'm using my computer to reply to you, as using my phone does make me concentrate harder and increases headache, but not sure if it triggers anything.