Hey,

Last summer, from one minute to another, my scalp started itching and burning. Thought it was a flare up of my eczema, but after weeks it became very severe, started spreading towards my chest, back. I couldn't endure my clothes anymore or the pressure of heath. The sun was burning my clothes into my skin. After seeing multiple doctors (neurologists, dermatologist, ER, nutritionists) and getting antidepressants that didn't work. On MRI's was nothing to see. I completely lost it. I started drinking to numb the pain which worked for a short period of the day until it didn't anymore. I just wanted to die because I barely slept during the first 3-4 months since the pain began. I couldn't understand why my body was doing this to me. I only stayed inside during summer and barely could wash myself because the water hurt my skin. Begin october I started to use sleeping aid medication. As it began to getting colder the pain went away, just like that. Winter is pure wellness for me, I even enjoy warm showers in a cold environment, stove (from a distance) is pleasant, but last month I started to get anxious as spring and summer are getting closer again, so I started to look for a new neurologist. I found, finally!!!, a doctor who understands me and after hearing my story he immediately called the hospital where he works besides his private practice, to book me in for a biopsy to see if it is sfn. Can't avoid treatment then with stronger antidepressants. He is the first one that assures to me give me painkillers if the pain becomes extensive again during summer. The other doctors gave me codeine... He also wants me to go under a tanning bed when I'm ready (actually my idea) for a few minutes to see if something has changed over the past months and how I react to extreme heat now. I had covid just before getting the symptoms, so I hope it spontaneously went away just as it spontaneously began. I use trazodone too since 6 years, doctor said it could be a trigger too... As I read all you guys stories, I think the war isn't over to be honest, because apparently it never goes away if it is indeed sfn? I'm so sorry for your pain by the way, it isn't fair and I hope you have a few good days too so you can get outside. Temperature isn't something we need to think about, just adapt our clothes and protect our skin during extreme cold and heat. Never knew something like this existed. If you like, I want to place updates about possible treatments my doctor will start if it is indeed sfn or another sort of neuropathy. Which treatments did you undergo yet? My doctor is doctor Oedit from Belgium, extremely compassionate and very determined to help and comfort his patients. Even gave me his number to contact him via WhatsApp if necessary. Finding a compassionate and good doctor helps a lot. 9th of march I will get the biopsy. Hang in there! Love, Jen