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Redundant/Tortuous Colon & Severe Constipation

Digestive Health | Last Active: Mar 5 7:30am | Replies (81)

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@mothermary1

Hi, I have my fourth GI motility specialist. Now I’m back on amitiza twice daily and erythromycin 3 times a day and trying 60 ml Philips milk of mag every other day but causes vomiting and I can’t sleep. I was to have a total colectomy but at that time my stomach tested fine with nuclear meal and test for small bowel was great. Ten months later I completely failed Smart Pill study where now I have severe gastroparesis and severe delay in small bowel. I’m not getting surgery unless push comes to shove. I think it will bring on an entire new set of problems, possibly worse than now. I’m 68. Until 3 years ago I was very active so much you couldn’t keep me still. Now I’m miserable. One day at a time. I’ve tried linzess and Motegrity and a combination and so many other drugs too.

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Replies to "Hi, I have my fourth GI motility specialist. Now I’m back on amitiza twice daily and..."

I’m 65. Smart pill was what finally diagnosed the slow motility of my entire gi tract but colon is the worst, 82 hrs. My previous motility doc was big fan of Motegrity but I felt awful on it. I too was super active until all this hit nearly 4 years ago now I live day to day. Can never travel or make plans. My life controlled by my colon. Had a meltdown in the gi’s office last week. I think he may finally “get it”!