← Return to I have smoldering Myeloma. Does anyone have this diagnosis?

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@richardab

It's been a process for me. First comes lab results for tests done for a totally different issue which reveals "abnormalities". So you get the recommendation to see an oncologist. Which, for most of us, is the same as getting a death sentence. You see an oncologist, get more blood tests, and are diagnosed with Asymptomatic or Smoldering Myeloma. You're told it's not quite cancer but ... and are given information regarding SM including the big one: the % chance it might progress to Multiple Myeloma each year. So you're started on quarterly blood/urine tests, perhaps have a full body x-ray and/or a PET CT scan. Your results may be stable or show degradation. At first I obsessed that I had SM but now I live with it stress-free. It's out of my hands except for trying to live as healthy as I can. Best to you.

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Replies to "It's been a process for me. First comes lab results for tests done for a totally..."

I have Smoldering Myeloma, begain 14 years ago. when a M spike was found, told that I would probably always have MGUS, then they detected iron deficiency anemia. Had blood transfusion (20) and a lot of iron infusions. Now, I am stable but they are reconsidering the iron defiency anemia. I am guessing it may be a form of hemolytic anemia. I was on 4 month follow-up for many years and now on 3 week follow-ups. My hemo-onc and the PAs want me for testing but are mum about what I have. I want to decide before I move in the summer to Las Vegas. They don't anyone experienced in MM there, so will try to go to CA for checkups on the MM and have local hemo/onc deal with whatever I have,