EDS in the News

Author: Dacre Knight, MD, MS

Over the past few weeks, there has been more attention to the rising number of patients (and some celebrities) diagnosed with hypermobility disorders or Ehlers-Danlos Syndrome. A recent CNN article raised the question, "how can there be so many people affected, yet so many unnoticed?"

One thing is certain: there are many with hEDS/HSD themselves who are working to find solutions. These solutions can be found in everything from patient advocacy and research on diagnostic tools and treatments, to a general shared understanding of the condition. To this end, the Mayo Clinic Women’s Health Blog recently highlighted the work of our EDS Clinic. It is important work, not only for increasing awareness to better serve our patients, but to also reduce the time to diagnosis, and draw attention to the need for further research that will benefit the care of our patients.

Have you come across any other recent news on EDS/HSD you’d like to share?