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Eyes and Neuropathy

Eye Conditions | Last Active: Dec 23, 2023 | Replies (299)

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@patriciaedna1954

I am in process of getting some answers about the type of debilitating small
fiber type, sub type etc of this two yr. nightmare.
I too have extremely dry eyes. Someone mentioned maybe Accutane at 40 yr s old was a contributing factor. Recently also diagnosed with glaucoma.
My eyes also do not close completely when I sleep. Also a contributing factor.
I've been to so many eye doctors, an ocular plastics person. Some say, thyroid eyes, others just make light of it. I feel for you and your suffering. The expense of over the counter eye drops, the restasis, eye washes. It is ceaseless.
Don't know if SFN is connected, but I suspect if autonomic in nature, it is.
The look of bleeding in eyes is a constant battle.
I have been seeking help for dry eyes since 2014.

Hope you get some relief

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Replies to "I am in process of getting some answers about the type of debilitating small fiber type,..."

Welcome @patriciaedna1954, I'm sorry to hear you don't have any answers yet. I can't imagine how hard it is to struggle with eye issues as long as you have. There are a couple of other discussions you might find helpful:
--- Was just diagnosed with glaucoma, need support!: https://connect.mayoclinic.org/discussion/was-just-diagnosed-with-glaucoma-need-support/
--- Dry Eye & PN: https://connect.mayoclinic.org/discussion/dry-eye-pn/.

There is also a leaflet with some information about thyroid eye disease from the British Thyroid Foundation that might be helpful - https://www.btf-thyroid.org/thyroid-eye-disease-leaflet.

It sounds like you've already seen a lot of different eye doctors. Have you thought about getting a second opinion or seeking help at a teaching hospital or major health facility?