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Your tips as I prepare for first phlebotomy
Blood Cancers & Disorders | Last Active: Feb 18, 2023 | Replies (27)Comment receiving replies
dale1k Thank you so much, I am doing funny things, my head is not clear (like went to walmart to pick up prescription 3x and for got, I had money to pay for food at the grocery store- had money in my hand and walked out without paying, they came and said you need to pay for that, when to birthday party and crash on their couch, had picnic and forgot everything at home- kept friends waiting while I had to get the stuff, small stupid stuff and it's NOT like me. I feel so much better but my mind is gone. I think I'm over pushing, I push until I scream in pain, just want to go and do- but my body isn't keeping up with what I used to do???????? Frustration; Do you feel like this 2? The nurse said it was almost 1-litter = pop bottles at store (500???) a bag ??? (about 1/2) I was gone 4 hours albertedward I do feel better but it effects my mind
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I have had pv for years but just found out after a blood clot formed in my right leg and kept growing to the top of my leg.Then it stopped and after 2 months the vain dissolved. Now I have blood drops and hydro pills.I have had memory loss as you but getting better with time.I have a Newfoundland dog puppy and when I would have a attack and faint the dog new and would lie on me until it passed. Some time I would not know what happened.But now things are much better .No more fainting or getting teary.But PV does really suck until you get it under control
Thank you for your reply Raremiracle2
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A quick synopsis of my situation… In late 2020 I felt a minor dizziness and my balance was a bit off… Also had loss of appetite… I was thinking at that time that maybe something was wrong with my brain… I was also forgetting things short term which I never did before.. Went in to the Dr for tests… CBC indicated potential problem.. HCT was very high.. Also saw a neurologist who ordered a brain scan… Saw hematologist who ordered JAK2 mutation test.. JAK2 test confirmed I had PV.. As a “bonus”, neurologist said I had physical evidence of a stroke.. They couldn’t tell me when, just that I had one… I couldn’t believe what was happening.. I keep active , bike ride almost every day, plenty of walking, etc.. I asked neurologist..how could I have possibly missed a stroke?? She couldn’t give me a good answer except to say that normally this would have had major symptoms… I am lucky in that I feel really good, bike any day the weather is reasonable… Hydroxy-urea has my HCT under control.. No pain, good energy level, and short term memory has improved.. Best to you..