Strange story: Watch for changes in your condition, keep an open mind

Posted by elizabethjoan @elizabethjoan, Feb 9, 2023

Hello all. I have not written for quite some time as my PMR trip took a strange turn. I was diagnosed in early July, on prednisone 40 which was a miracle drug. However in October the pain had stopped moving around and localized in my right hip. I had an X-ray and was told my hip (perfectly normal on X-ray in May) was now totally destroyed and I needed a total hip replacement. I live in Canada so the wait began……. 4 months of agony, moving from walking with a cane, then a rollator and then wheelchair-bound. I got my new hip 2 days ago and I cannot believe the pain relief I am feeling. I am down to 7.5 mg of prednisone and determined to get off the miracle/ deadly drug by the end of this month. And hope I never have to take it again. We do not know what happened to the PMR. Did I ever even have it…..blood work strongly indicated I did and the symptoms were all there.
Just posting this as a message to keep your eyes open looking for changes in your condition and not just focus on the one. There may be another elephant in the closet.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@dadcue

Actually "deranged" is a fairly common way of describing medical abnormalities not just the immune system.
https://khn.org/news/article/covid-autoimmune-virus-rogue-antibodies-cytokine-storm-severe-disease/
It sounds better than the immune system becomes "unhinged" and other terminology.

My personal favorite was that things were "running amok" as in violently raging, wild, or uncontrolled manner.

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Ok, I should realize that medical people can be just as zany as the rest of us. Thank you for the explanation.

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