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This and That and Talk - My Transplant
Transplants | Last Active: Feb 14, 2023 | Replies (1670)Comment receiving replies
@rosemarya, just an update. My BCBS insurance contacted me and says that Quest is in-network for both California and Arizona so I'm glad that's cleared up. I think it worked out because they are border states.
Regarding your follow up with Mayo Rochester, how often have you been going to the annual checkup at Rochester and what labs and procedures do they run? Do they still run the same labs/procedures as they did the first year? The one-year checkup at Mayo Az is the same as the 4-month check up. I believe the 2nd year check up is the same as the 1 year. Then the 3rd year checkup is just a remote appointment.
At Mayo Az, they follow the patient for up to 3 years only and then they sort of "kick you to the curb". No more follow ups after the 3rd year at Mayo Az. I'm hoping that they will agree to see the patient if after that time, there is urgent issues regarding the health of the kidney that the local neph cannot handle. The local transplant center here(UCLA, Cedar Sinai) are reluctant to take patients from out of state. They will refer back to where you got transplanted!! Looking forward to your inputs. Thank you!
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@caretakermom
It is great to hear that you have received this positive update about Quest being in-network for your California and Arizona providers!
My annual visits are going to be different that yours. I have a double transplant - liver and kidney. It was a simultaneous transplant (1 donor, 1 surgery, 2 organs). As a result I am under the care of 2 departments! Mayo Clinic coordinates the care so that both departments work together and I'm not even certain which labs/procedures are for liver and which are for kidney.
I do not know the process for places other than Mayo Rochester where I had my transplant. But it sounds like you have some valid questions about future follow-up care. The best resource will be your husband's current transplant team because only they know his medical history and his medical needs. The question about whether you can be referred back to the original transplant dept is a good one. Add it to your lost of questions for your next visit.