← Return to Polycythemia Vera: Just been diagnosed
DiscussionPolycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Dec 16 1:26pm | Replies (400)Comment receiving replies
Replies to "I’m awaiting my JAK2 V617F status and overwhelmed by so much information. I’ve had several episodes..."
I tested negative for the jak2 went to the hematologist and he did more blood tests. he's tests also came back negative for bone marrow cancer. but now i have low iron never had that before. So now ever six weeks I get blood tested I feel like there just waiting to see where the cancer is going to pop up. So far no cancers but the stress and reading materials I'm starting to believe is just making matters worse. I see you take sudafed so did I for many years. It cleared up my sinuses and bronchial congestion. My doctor has said repeatedly not to take it. So I haven't taken it since last year my nose is always runny. I was diagnosed with polycythemia disease this summer. I also have long term lyme arthritis but that seems not a concern to the doctors. So after 7 months I'm still not sure what is wrong with me. Im sure this is little help but your not alone with worry
Just wait for your results of jac2 once back and if positive they will put you on the appropriate medication it’s all overwhelming to start with and I know worrying