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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Blood Cancers & Disorders | Last Active: Aug 3 1:59pm | Replies (203)
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@loribmt

I know what it’s like to feel so miserable and be dismissed. My PCP totally missed my diagnosis of a very serious and aggressive blood cancer. Long story, but here I am, 4 years later and I am cancer free. Fortunately the diagnosis came in time to help me, but not from her.
Be assertive and get that referral soon. You know your body better than anyone. ☺️
Please keep me in the loop, ok?

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Replies to "I know what it’s like to feel so miserable and be dismissed. My PCP totally missed..."
lipstickonmycollar | @lipstickonmycollar | Feb 11, 2023

You're awesome! Such a powerful story! I will keep you updated.

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splashgirl1961 | @splashgirl1961 | Feb 12, 2023

Thank you both for the advice in this post. Lipstickonmycollar I too have these issues. Been fighting two years to get diagnosed. Lost 50 lbs, no cause, no firm diagnosis to date, but working with hematology oncologist finally! I too have same lambada/kappa proteins off charts, CT with contrast don’t indicate lymph gland enlargement! No PET yet, of course medical/financial/insurance creates barriers to care as well! Profits over lives and care is ridiculous! I return on 2/24 for follow up! I’m thankful I found this group and send healing and comfort to those here and struggling! Will keep watching and reading!

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