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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Blood Cancers & Disorders | Last Active: Jun 9 1:13pm | Replies (181)
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@lipstickonmycollar

Thank you so much for your response. I will seek a second opinion. I also forgot to mention that my nephrologist was very concerned. He even told me that he thought there was cancer somewhere and told me to talk to my oncologist and I did. The response was the same from my oncologist. It could be something totally different. But whatever it is, it needs to go. I'm miserable! I'll talk with my PCP and ask for a new referral. I feel encouraged now to advocate for myself.
Again, thank you!!!

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Replies to "Thank you so much for your response. I will seek a second opinion. I also forgot..."
Lori, Volunteer Mentor | @loribmt | Feb 11, 2023

I know what it’s like to feel so miserable and be dismissed. My PCP totally missed my diagnosis of a very serious and aggressive blood cancer. Long story, but here I am, 4 years later and I am cancer free. Fortunately the diagnosis came in time to help me, but not from her.
Be assertive and get that referral soon. You know your body better than anyone. ☺️
Please keep me in the loop, ok?

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Lori, Volunteer Mentor | @loribmt | Apr 27, 2023

Hi @lipstickonmycollar I just wanted to followup with you. It’s been a couple of months since we last chatted. Any news with a second opinion?

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Lori, Volunteer Mentor | @loribmt | Jun 11, 2023

Hi @lipstickonmycollar (your name always puts that song in my head and a smile on my face for the day 🙃)
It’s been a while so I just wanted check in to see how you’re doing and if there’s been any updates. I know you’d been feeling so miserable and not getting much help from your doctor back in February. Have you been able to get a second opinion?

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