What do you do for Neuropathy itch?

Posted by Chris Trout, Volunteer Mentor @artscaping, Apr 27, 2020

Good morning everyone. I am desperately in need of help with what is called Neuropathy itch. I have SFN (small fiber neuropathy) and am a medical cannabis user for pain. I don't know what to use for this itching. It appears that it reaches through several skin layers. No matter how much you scratch you make it worse, not better. Once you start itching, it's over....your are stuck scratching.

Have you tried certain baths? Oatmeal? I have a steroid cream called Triamcinolone Acetonide. Not exactly a wonder drug. Is there a better one?

The itching results in a terrible level of anxiety. I try to run away from it and cannot. It reminds me of summer in Minnesota when the mosquitoes launch their attacks. I am female with "O" negative blood which they just devour.

Even if you have a solution for other than neuropathy, please share and I will happily do the research. The stress of isolated living and a form of depression that is about our global community also creeps in.

The only thing that works right now for food is gelato.......Salted caramel, if you please. I hope you are all well and blessed with good health today.
Chris

Interested in more discussions like this? Go to the Skin Health Support Group.

John, Volunteer Mentor | @johnbishop | Feb 10, 2023

In reply to @snortenbme1 "Hi all. Please share the namwmes of the specialist that you use for chronic neuropathic itch...." + (show)

Welcome @snortenbme1, While you wait for members with experience to share information with you, I thought I would share an interesting study I found with you.

-- Treatment of scalp dysesthesia utilising simple exercises and stretches: A pilot study:
https://pubmed.ncbi.nlm.nih.gov/29577244/.
The article didn't mention the specific exercise but I found another site that mentions the specific exercises and refers back to the study. The site has videos of the exercises which might be something to try or discuss with your doctor.
-- Scalp Exercises For Patients with Scalp Dysesthesias: https://donovanmedical.com/hair-blog/scalp-dysesthesias-laidler-study.

Chris Trout, Volunteer Mentor | @artscaping | Feb 10, 2023

In reply to @dave130 "I’ve had neuropathy for about 2 years now. Just recently though, the itching started. It’s all..." + (show)

Good evening @dave130. I am just checking in to see if you have been able to ask about Dupixent for the neuropathic itch situation. I was able to have the financial situation renewed for 2023 and now receive 3 months of Dupixent 4 times a year.

I am still free of all itching and have been so since my first injection in August. I so don't want anyone to suffer from that annoying itch when there is now something that works 100 percent without any side effects.

May you be free of suffering from the "itch".
Chris

Chris Trout, Volunteer Mentor | @artscaping | Feb 11, 2023

In reply to @snortenbme1 "Hi all. Please share the namwmes of the specialist that you use for chronic neuropathic itch...." + (show)

Welcome @snortenbme1, you have a neuropathic itch I assume. What are your symptoms like? Have you found any topical medications that work for you or do you rely on injections and pills?

It would be helpful to know more about your neuropathic symptoms other than the "itch". Have you received a diagnosis?

I see your request for names of neuropathic itch clinicians. I have been working with my dermatologist. She has been helping me for several years. Just recently she hung right in there with me to make sure I was approved for Dupixent. After watching my skin deteriorate for a couple of years......I was happy that she left no stone unturned, so to speak.

Have you found a dermatologist to be helpful with the "neuropathic itch"?

May you be free of suffering and the causes of suffering.
Chris

hawkssr | @hawkssr | Feb 11, 2023

In reply to @artscaping "Good evening @dave130. I am just checking in to see if you have been able to..." + (show)

I’m trying Dupixent, my derm gave me injections from their samples and I go back in two weeks. My concern is the cost even with my Medicare BCBS advantage as I see it’s tier 5 so right now I have no idea what I may have to pay. Did your insurance cover all of it? Also I was not prepared for the huge sting that came with the injections in my thighs, is this normal, my leg was shaking so bad during the last injection I’m not sure I could have done it myself. Thank you!

snortenbme1 | @snortenbme1 | Feb 11, 2023

Hi I have chronic itch, burn,tsting, and throbbing pain of the scalp. My scalp is normal on appearance on examination. I am seeing a neurologist who says I am his first neuropathic itch patient( with scalp dysthesia (hope I spelled thar right) so far pills aren't helping. Topical no help, I tried a steroid foam. I am looking for Doctors that may be able to help. Who is your Doctor?

snortenbme1 | @snortenbme1 | Feb 11, 2023

In reply to @artscaping "Welcome @snortenbme1, you have a neuropathic itch I assume. What are your symptoms like? Have you..." + (show)

Who is your Doctor?

snortenbme1 | @snortenbme1 | Feb 11, 2023

In reply to @hawkssr "I’m trying Dupixent, my derm gave me injections from their samples and I go back in..." + (show)

Who is your Dermatologist.

hawkssr | @hawkssr | Feb 11, 2023

In reply to @snortenbme1 "Who is your Dermatologist." + (show)

He’s in San Tan Valley, AZ

snortenbme1 | @snortenbme1 | Feb 11, 2023

In reply to @hawkssr "He’s in San Tan Valley, AZ" + (show)

Please provide nane thank you.

ztiggie | @ztiggie | Feb 11, 2023

In reply to @snortenbme1 "Hi all. Please share the namwmes of the specialist that you use for chronic neuropathic itch...." + (show)

CT b/c
I

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