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← Return to Chiari Malformation type 1
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Hi Tracy @tracyeylens Welcome to Mayo Connect.
You'll notice that I moved your post to an existing discussion groups about Chiari Malformation Type 1. I did this so you can connect with others talking about this condition like @awesomesauce17 @david33 @jillweinandt @oh_suzie_q @luckygirl and others. Some have had surgery, while others have opted not to. See all their posts by clicking VIEW & REPLY in the email notification.
It sure sounds like you need a second opinion, Tracy. At Mayo Clinic, experts work together in multidisciplinary teams to help you navigate your healthcare journey, answer your questions and guide you through a coordinated treatment plan. Here's the contact information of our 3 campuses http://mayocl.in/1mtmR63
Naturally, you'd expect me to recommend Mayo Clinic. However, I invite others to make additional suggestions too.
You may also wish to watch this archived Video Q&A that includes some discussion about Chiari.
- #MayoClinicNeuroChat about Congenital Anomalies of Brain and Skull https://connect.mayoclinic.org/webinar/mayoclinicneurochat-about-congenital-anomalies-of-spine-brain-skull/
Is travel for medical care possible for you, Tracy?
Replies to "Hi Tracy @tracyeylens Welcome to Mayo Connect. You'll notice that I moved your post to an..."
At the risk of overwhelming you with links, Tracy, I have a few more tips. If you are considering Mayo Clinic, you may be interested in the group on Connect called "Visiting Mayo Clinic" https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/
Feel free to scroll through the discussions and join in with your questions. Here's one that you might find helpful
– Getting your first appointment https://connect.mayoclinic.org/discussion/getting-your-first-appointment/
I would also like to share the following resource:
Mayo Clinic in Rochester has Concierge Services to help make your trip go smoothly. They provide information about travel, lodging, Mayo Clinic and community resources to plan your visit. And it’s free.
Contact form: http://bit.ly/2nM3mr0
Hours: Monday-Friday, 8 a.m.-6 p.m. CST by phone, 8 a.m.-5 p.m. in person
Location: Mayo Building, Lobby level, International Center
Email: concierge@mayo.edu
Phone: 507-538-8438
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Thank you for replying to my post.
I am on my 3rd Neurologist and 2nd Neurosurgeon here at home. I do not believe that they are very knowledgeable with Chiari. So I posted here to try and help my decision of to go elsewhere. Quite a few yrs back before my 2nd husband committed suicide, we had taken his mother to Mayo and loved the care she rec'd. After researching more, I am definitely leaning towards Mayo.
Travel is not going to be an issue. I have already looked into drive time, or flying and hotels. Just trying to get info to make a better decision.
I will definitely take a look at all the links you posted.
Thank you,
Tracy