My son has chiari. He's 20 now but was diagnosed at 18 with it. He has been on NUMEROUS migraine meds and currently doing botox. the first round helped maybe for two weeks. After that, he still has headaches daily The intensity of them come and go where before his headache was pretty bad daily but right now the botox is not helping much. Not sure we will continue with botox. We have been to neurologist for his Chiari, including at the Mayo Clinic. Everybody says his Chriari is not symptomatic. I think different. He has been having daily chest pain and shortness of breath which is put off as depression and anxiety. We finally had a cardiologist take him serious and found out he has inappropriate sinus tachycardia after wearing a heart monitor for 4 weeks. The propanolol he was placed on helped the first couple months however now the chest pain and shortness of breath is back, sometimes even worse. He has constant neck pain and stiffness. He has periphera cyanosis to both hands and feet that's associated with numbness. During this past summer, when we had heat index in the triple digits, my son would be standing outside sweating however his hands and feet are ice cold. He now has excessive sweating. This past December, we had two weeks of freezing weather. All the while his underarms are sweating so bad he has to change shirts. He sweats so bad now, he has to change shirts throughout the day almost daily. His balance is affected. His vision is affected. He has all these symptoms but yet we are told it's not his chiari even though most of his symptoms are that of chiari. Did I mention frequent urination?? Yep has that as well. Been to all kinds of specialist for these specific symptoms and those body systems check out fine. It's getting frustrating. It's hard seeing him in pain and feeling so bad and dr after dr saying it's just depression and anxiety that there's nothing else wrong because his chiari is asymptomatic. Good luck in your journey with Chiari I hope you don't get the run around like we have had. We are still continuing to find that one dr that will take him and his symptoms seriously. I just joined this group hoping to get support and any new ideas. I'm so glad I see several that have had great results and some relief with their symptoms. I wish you the best!!!! You know your body so don't let anybody tell you there's nothing wrong with you.